Pulmonary appointment

I have some fairly decent news...
Madison can now be taken off oxygen two hours at a time, two times a day. The plan is to increase the time by an hour each week so once we are up to 4 hours two times a day she will have her sleep study to see how she does off her oxygen completely. They have also cut two medications to one time a day instead of 2 times a day so that is exciting! Also miss Madison is up to 8lbs 4ozs! I took some bath pictures a couple days ago. I still have to edited them and then I will share.

To all those who are just reading my story from the beginning and those still following thank you it is very sweet of you :)

On the road to home we go...

but who knows exactly how long that will take. Madison is a 38 weeker

That TINY thread was thee oh so famous PICC line.

meaning her due date is in exactly 2 weeks from today. Her PICC line was removed yesterday and I was there to witness it. It literally looked like a thread, which was going into a major artery right above her heart. This morning around 6:30AM she was moved to CCN and its so different there. Everything seems a bit more quiet and no so fast paced. There were a few dings here and there but even then it seemed really calm. I went in for 3:00PM to do her usual feeding and they had already fed her. She took 18ccs and the rest down her tube. I was a bit upset because I woke the hubby up from his nap to rush and get down there to feed her and it was already done. The nurse did say to me she was up and looking for a bottle so I guess it was good they are trying to do it on her time more so than on an exact schedule. She is making me a bit nervous lately. When I've held or or my husband holds her after a while her heart rate drops a bit and her O2 levels and she sometime self corrects it and she seems good and it happens again then I get freaked out and I put her back in her bed and shes better. Last night I was holding her and she was acting up and her was dinging for a while and there was a nurse near by and didn't even turn around to see if she was okay. She was dipping into the 50s for her O2 level which should be 91+ and she didn't come over until I was like "Her oxygen is really low," and she was like "Oh shes coming up." By then she was in the 80s still dinging and shot back down to the lower 70s still dinging so I put her back, and I could have sworn her lips looked a bit blue to me. How am I going to know whats happening when we go home? Or if she is home on oxygen and a monitor how will I even enjoy being home with her when I'm just going to stare at her monitor making sure everything is going okay.







Shes what!?

900 grams aka 2 lbs! She has gotten to two pounds! I knew I noticed some extra chunkiness on her arms and legs. Shes getting to be a big girl now! So she is still on the nasal oxygen and vent. The brought her vent down to 15 again like last time(when the decided to switch her to just nasal oxygen). Apparently over night her belly got a bit bigger because (they assume) it was filling with air because it has no where to go since she is no longer on the breathing tube. The nurse says she sucked out 9CCs of air yikes! So they put a larger tube in her mouth to her belly to hopefully be more successful at sucking out that yucky stuff. She was very vocal today with the nurse messing with her but didn't peep for me changing her diaper :) Mommy points for that :P I was hoping to hold her today the nurse was too but that want to watch the belly a bit more before they let me again, booo! I did touch her a lot today it was nice. I was lighting rubbing her palm with my hand and every now and them she would clench my finger :D and I was rubbing her leg for a while over the blanket...I think she liked it she didn't destat once :) Well we are bring family there tonight and hopefully things stay the same and or are better...like lower oxygen and talks of taking her off hmmmm.

Extubated...

On purpose thus time. They removed Madison's breathing tube the night before last because she was doing so well in the low setting and her blood gas were coming back great. So they had her on nasal oxygen only and eventually switched her to room air and was doing great. We got to see her little face finally and she is adorable! Unfortunately a little while after we left they had to ad the vent back (still on relatively low setting) because she got tired from doing everything on her own but the good this is she isn't intubated again, its still through her nose. Atleast we know she is capable of doing it, it will just take some getting used to but I am proud of her :) and I'm sure they ail try once again. On a crappy note (for me atleast) I am to return to work on friday...boo! With my nursing hours. Am I a nurse? Nope but I have their hours ha. 6:00AM - 6:00PM friday - Sunday oh joy! But in the end I suppose it would be good for Madison when she comes home being that I will have Monday through Thursday off. I just wish I had more time and we weren't struggling with money issues otherwise I probably wouldn't go back.