So I got a call from her Pedi on Wednesday and told me he got in touch with the gastrointestinal doctor. Before actually having to go in there they came up with a list of things they wanted to try first before having her go in.
The first on that list was taking her off lactulose (sp?) and all the prune juice and put her on pear juice mixed with Miralax. It supposedly doesn't cause as much gas as the others so it's a better option.
Then I thought to myself (not thinking to ask her pedi while on the phone) where the hell do I find pear juice? I've never heard of it and was hoping I'd find it easily...which I did. It was in the baby isle...who would've thought? I couldn't find any type of pear juice in the general juice isle...do adults not drink pear juice?
Today is Day 3 of pear juice and miralax and I have to say I saw some difference in her today. She was whinny today BUT she wasn't screaming her head off nearly as much as it's been. So I'm hoping this will be something that will help her stay regular and as pain free as possible.
So far I recommend pear juice & miralax for your babies constipation needs!
Showing posts with label doctor. Show all posts
Showing posts with label doctor. Show all posts
Friday, October 5, 2012
Tuesday, October 2, 2012
And it's back
Something is up with Madison's insides. A baby shouldn't scream, cry and tighten up her legs in an attempt to prevent herself from passing gas or pooping. It isn't normal and she never did that EVER not even when she came home and was constipated but actually starting going on her own its never happened. She now only goes a smidge but we change smidge diapers 10+ times a day and we have to hear the screaming and crying and there is nothing we can do to help. So we will be seeing a gastrointestinal doctor again hopefully soon. I just hope it's nothing major.
Friday, September 21, 2012
6 Month Eye Appointment Check Up
After we left Madison's 6 month check up I was kind of upset. As some of you know or may not know because of how premature Madison was and how long she was on oxygen she developed Retinopathy of Prematurity (ROP)
This is what Wikipedia has to say about it:
Retinopathy of prematurity (ROP), previously known as retrolental fibroplasia (RLF), is an eye disease that affects prematurely-born babies. It is thought to be caused by disorganized growth of retinal blood vessels which may result in scarring and retinal detachment. ROP can be mild and may resolve spontaneously, but it may lead to blindness in serious cases. As such, all preterm babies are at risk for ROP, and very low birth weight is an additional risk factor. Both oxygen toxicity and relative hypoxia can contribute to the development of ROP.
Normally, maturation of the retina proceeds in-utero, and at term the mature infant has fully vascularized retina. However, in preterm infants, the retina is often not fully vascularized. ROP occurs when the development of the retinal vasculature is arrested and then proceeds abnormally. The key disease element is fibrovascular proliferation. This is growth of abnormal new vessels that may regress, but frequently progresses. Associated with the growth of these new vessels is fibrous tissue (scar tissue) that may contract to cause retinal detachment. Multiple factors can determine whether the disease progresses, including overall health, birth weight, the stage of ROP at initial diagnosis, and the presence or absence of "plus disease". Supplemental oxygen exposure, while a risk factor, is not the main risk factor for development of this disease. Restricting supplemental oxygen use does not necessarily reduce the rate of ROP, and may raise the risk of other hypoxia-related systemic complications.[citation needed]
Other physicians have suggested that supplemental oxygen, specifically oxygen tents given to pre-term infants specifically causes ROP. The hypothesized mechanism involves the degradation and developmental cessation of blood vessels in the presence of excess oxygen. When the excess oxygen environment is removed, the blood vessels begin forming rapidly again and grow into the vitreous humor of the eye from the retina, sometimes leading to blindness.[1] This does not preclude the dangers of hypoxic environments for premature infants.
Patients with ROP are at greater risk for strabismus, glaucoma, cataracts and myopia later in life and should be examined yearly to help prevent and treat these conditions.
So with that said Madison had laser surgery in both her eyes. I was told she may have to wear glasses, everyone in this family has glasses but that's no big deal. We are supposed to go back for another 6 month follow up and I was warned that, that may be the time when she will get glasses. According to the doctor the prescription is "very strong," and there is one type of frame for kids. So I took that as her having coke bottle glasses. That part upset me. He took it as no big deal but to me she sees fine. She looks at everything she gets to the things she wants across the room I don't feel like there is anything wrong with her vision and I don't want to put glasses on my daughter's face until she can tell me whether or not see can see these things or not.
My husband was upset too and was talking about getting a second opinion, I think its a good idea but I just don't get the whole "let me examine your eyes and I can tell you need glasses," deal without a child being able to respond. I understand looking in her eyes and checking out how the vessels in her eyes are but that doesn't state whether she is blind or not. I just hope between now and then Madison will prove him wrong. Either way I don't think he can tell if she can see by just looking at vessels.
This is what Wikipedia has to say about it:
Retinopathy of prematurity (ROP), previously known as retrolental fibroplasia (RLF), is an eye disease that affects prematurely-born babies. It is thought to be caused by disorganized growth of retinal blood vessels which may result in scarring and retinal detachment. ROP can be mild and may resolve spontaneously, but it may lead to blindness in serious cases. As such, all preterm babies are at risk for ROP, and very low birth weight is an additional risk factor. Both oxygen toxicity and relative hypoxia can contribute to the development of ROP.
Normally, maturation of the retina proceeds in-utero, and at term the mature infant has fully vascularized retina. However, in preterm infants, the retina is often not fully vascularized. ROP occurs when the development of the retinal vasculature is arrested and then proceeds abnormally. The key disease element is fibrovascular proliferation. This is growth of abnormal new vessels that may regress, but frequently progresses. Associated with the growth of these new vessels is fibrous tissue (scar tissue) that may contract to cause retinal detachment. Multiple factors can determine whether the disease progresses, including overall health, birth weight, the stage of ROP at initial diagnosis, and the presence or absence of "plus disease". Supplemental oxygen exposure, while a risk factor, is not the main risk factor for development of this disease. Restricting supplemental oxygen use does not necessarily reduce the rate of ROP, and may raise the risk of other hypoxia-related systemic complications.[citation needed]
Other physicians have suggested that supplemental oxygen, specifically oxygen tents given to pre-term infants specifically causes ROP. The hypothesized mechanism involves the degradation and developmental cessation of blood vessels in the presence of excess oxygen. When the excess oxygen environment is removed, the blood vessels begin forming rapidly again and grow into the vitreous humor of the eye from the retina, sometimes leading to blindness.[1] This does not preclude the dangers of hypoxic environments for premature infants.
Patients with ROP are at greater risk for strabismus, glaucoma, cataracts and myopia later in life and should be examined yearly to help prevent and treat these conditions.
So with that said Madison had laser surgery in both her eyes. I was told she may have to wear glasses, everyone in this family has glasses but that's no big deal. We are supposed to go back for another 6 month follow up and I was warned that, that may be the time when she will get glasses. According to the doctor the prescription is "very strong," and there is one type of frame for kids. So I took that as her having coke bottle glasses. That part upset me. He took it as no big deal but to me she sees fine. She looks at everything she gets to the things she wants across the room I don't feel like there is anything wrong with her vision and I don't want to put glasses on my daughter's face until she can tell me whether or not see can see these things or not.
My husband was upset too and was talking about getting a second opinion, I think its a good idea but I just don't get the whole "let me examine your eyes and I can tell you need glasses," deal without a child being able to respond. I understand looking in her eyes and checking out how the vessels in her eyes are but that doesn't state whether she is blind or not. I just hope between now and then Madison will prove him wrong. Either way I don't think he can tell if she can see by just looking at vessels.
Sunday, February 5, 2012
Another hospital trip
Well the night before last we called Madison's pediatrician because she seemed to be screaming a bit more than usual and we thought it might be from her hernia. So she told us to go to the ER that night or we can bring her into the office on Saturday...we did NOT want to do the whole ER thing again if it isn't anything so Saturday morning we brought her to the office (an emergency office not her normal Pedi) and they refused to see her...REALLY pissed me off let me tell you. They said we HAD to go to the ER. So we went...after 4ish hours just to be let go. We were told to keep on eye on her hernia and make sure it doesn't get stuck out and that's pretty much it...just keep the appointment with the pediatric surgeons....and really the office doctor could take two seconds to do the same shit.
Wednesday, January 11, 2012
Fulltime
Let me start off by saying motherhood is a fulltime job in its own. How anyone goes to work and takes care of their child(ren) I don't know. However I am very thankful for the help I have. With her though I know she can't go to a daycare or really be around other kids especially right now so I'm glad I did decide to take the package and leave work because there would be no way I could keep passing her off to my parents. She is doing well, she's 7lbs 1oz and very close to to 19 1/2 inches long. She is sleeping better at night and is awake more during the day. She still has some constipation issues every couple days so we are seeing her pediatrician tomorrow and is having an eye appointment in the morning.
Thursday, December 29, 2011
Busy Busy Busy
Well these past few days well almost week now has got me pretty busy to say the least. Madison has kept me pretty busy between getting bottles ready, her med schedule and staying up all night because she's crying and won't sleep until after her 6AM feed. Since coming home it seems like there is no time in the day, because she eats every 2ish to 3 hours there isn't anytime for anything and everytime I look at the clock its her next feed. Where does the time go? She had her first appointment with her pediatrician yesterday and she is catching up with other babies but she ceded to get two shots...that was heartbreaking. She also saw her pulmonary doctor along with a nutritionist, social worker and an occupational therapist. She did see the doctor who did her laser surgery and said her eyes look great and it had only been 6 days after the surgery. So she will pretty much see everyone in a month. Nothing too much to complain about aside from the lack of sleep but it will only get better I'm sure.
Monday, October 17, 2011
Two missed calls.
The past few days have pretty much blended into each other. I started work on friday. Woke up at 4:45AM to be to work for 6:00AM and got out at 6:30PM. The first couple days weren't so bad but Sunday went on forever. It was so slow and my hands and shoulder were killing me from not doing that work in a long time. Ah well it is over now which leaves me time to update you all. Yesterday while grabbing my phone after waking up it says two missed called and a voicemail, 6 hours ago from no other place but the NICU. I was like ummm. So a doctor left a message saying we had to intubate your daughter again because she needed more support than what the cpap was giving her. It suspected that she may have pneumonia so antibiotics was started the night before last. Ugh as if I need more shit added to Madison's list. All that right before going to work, stressful day much? On top of that I can't remember when but its when I took a pee break I decided to check my phone and guess who it was NICU again so I was really worried. Listen to the message that said "you need to call us back right away," now what would you think in that situation? well my heart stoled and I started shaking. So I call "hi NICU," I say "hi this is Cecelia I was told to call back right away," she says "oh yes! Let me transfer you to so and so," "okay." And she finally picks up "hi so we just needed a consent for blood." Really all that and that couldn't be said in a voicemail... Well after I got out of work we went to go see her I life up the blanket on her incubator as I always do and there it was...something I've never seen before. She has a MASSIVE head! I say to my husband..."is this the wrong baby? Did they switch them?" Haha I was kind of serious but wow two days makes a difference. It really is big it went from a pear to like a small pumpkin size. And her little ears aren't so big and fit nicely with her massive head Haha. She looks so different. I have no clue where her eyebrows went and her forehead grewwww. Haha but wow.
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