Friday, September 30, 2011
Back home, the focus her belly
Madison made her journey home yesterday after 10AM and was back at a little after 12PM. Her PDA is fixed :) now the focus is on her belly. They put a contrast solution and did an extra to see if the solution would flow through nicely. Well the contrast flowed and then came to a stop. It is good that it didn't come outside the intestine so she doesn't have a perforation (anymore?) So their plan last night was to try a suppository to try and get things moving then did it in Boston and nothing so they tried back home and said if that didn't work they would try an enema which I think would work better...I hope it did. That is best case scenario. Worst case scenario another surgery...if the intestines did have a whole and healed over the scarring may have narrowed her intestine so much that nothing can pass through so in that case they would have to remove that portion and maybe reattached but that is unlikely because they wouldn't want the scarring to do the same thing so they would (I forgot the medical term) but a bag on the outside of her intestine to poop that way until she were a bit bigger to reattached her intestine with out that scarring issues, that is what I'm hoping DOESN'T happen whatsoever. So when I call for an update today I'm hoping the enema worked beautifully...
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Glad to hear the surgery went well. My son had NEC (perforation of the intestines). He was rushed to JHH at 7 days old (born 27w1d). They removed the perforated portion, found that he had a bit of lodged meconium and placed the two ends on the outside so he can poop in an bag (ostomy bag). They were going to send him home with his iliostomy however he started "dumping" so they had to put him back together. With in a couple of weeks of reattaching him and figuring out a few other problems he was having he was home. He had the surgery at 7 days old and came home 4 mths 3 weeks later. I have heard that at times its better to get the surgery done so that there isnt any more "damage". His twin also developed NEC a couple of months later. However there was no perforation. They put him on NPO (no feedings) started antibiotics and it healed and no surgery needed. I think of you and your family often. Having our child(ren) in the NICU is rough but having them transfered is even more emotionally taxing.
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