Everything changes last minute.

Today is the second time we've had to change our hotel arrangements. First was because we didn't have the the $500+ to pay to stay in a hotel for a week in Boston, to be with Madison. That is every penny we have. So we lowered it to two nights which comes to about $270 and that is a half hour from Boston. The next change was today. We were told yesterday she might not go to Boston on Sunday because they changed the minds about it because of her belly and all that then they got a call from the hospital saying they have no beds. So instead of going up Monday a day after she is there we will go up Tuesday because she is now "supposed" to go Monday but again that can all change again. Another thing that aggravates me, your a "children's" hospital and have a place for parents to stay but can't guarantee the room and the room only has one bed for one of the parents to sleep on...seriously? AND there are near by hotels with a reduced rate for parents/families to stay at but the rooms still even then are $200/night...ridiculous. So now I can only stay a couple nights a half hour away from her because the hospital doesn't have the right set up or can for sure say we have a room. The social worker even called yesterday and was like yeah we had to give your room away, boy was I glad I decided we weren't going up the day she will be going up. This whole thing is really just a big mess. If it were up to me I'd say leave her here until her belly is under control and send her when she is a bit bigger, but really what do I know...