Christmas

Here are some Christmas Photos I feel I should share. Taken today. So sorry for neglecting you all! We've all come down with a nasty cold, it spread through the whole house. December 13th was the twins' original due date so it marked Madison's actual first birthday. Tomorrow December 23rd is the day one year ago Madison came home from the NICU.

 

                                                                   

The Overnight.

It was nice. Kind of short lived because she had to be brought back into the nursery because she had a doctors appointment at 6:00AM to get her eyes checked out. So we gave her back after her 3:00AM feeding. Which by the way she took all her bottles from me so I fed her 3 times. I didn't sleep at all. I was up that morning at 4:50AM for work on Sunday and still up at 5:00AM the next morning(Monday). It was either her monitor going off for no reason or her crying but it was great just being there alone in a room with her. I did her meds a couple times and it wasn't too bad.

Anyway the doctor's appointment...not so well. Here eyes are getting worse. So at around 4PM we went to meet with the specialist and he of course was an hour and a half late...anyway bottomline she needs surgery. She is borderline for REALLY needing the surgery and is at the point where they don't want to do nothing and eventually have her retina detach and ultamitaly be blind. So all the good feeding she has been doing will be stopped today inorder to be prepped for surgery and we will have to start all over again BIG BUMMER. So tonight she will spend back in the NICU and they are going to start an IV...all the things we moved away from. Wednesday morning sometime will be her surgery. I'm not too worried she has gone through much worse.

ANYWAYS here are the Christmas pictures I promised!

Christmas Pictures

I can't believe I almost forgot about this. Thursday night my mother and I went to the hospital to take Christmas pictures of Madison. We weren't too prepared and because of being in the NICU before we weren't sure what she could and couldn't be exposed (props wise) so we. get her dressed up. Have the nurse clean off the counter we wanted to use and we put up a white blanket as a backdrop. We tried laying her on her back didn't work so well them we tried her belly same thing. So a nurse took her and sat her up and held her behind the blanket. Then my mom was like too bad we didn't have mini presents and a nurse was like or a big teddy bear to lean her against and all of a sudden someone pops over with a couple presents to add to the picture. I did an okay job with crappy lighting. I think round two will be on Monday. BUT unfortunately I can't showcase the photos because I'm on my cell phone so that will have to be another day when I have internet.

I'm not even going to get excited anymore....

this is how it ALWAYS happens. Back to the Oh so lovely Feeding issues! Grrr. So yesterday before a feeding. With the tube that goes down her nose they take a syringe and draw back to check her residuals...and there was 16ccs of food left that she hadn't digested from the feeding before. So with her next feeding they had to give her what the remainder of her feeding would be minus the 16ccs still left which pretty much lowered her feeding. So I don't know whats going on now. It's pretty irritating knowing she "was" closer to home and now there is more of a set back. So on top of not taking all her bottles all the time she isn't digesting much now either. Her due date is 8 days from today....I don't see her being home by then or even being home for Christmas', what the fuck?!