I have some fairly decent news...
Madison can now be taken off oxygen two hours at a time, two times a day. The plan is to increase the time by an hour each week so once we are up to 4 hours two times a day she will have her sleep study to see how she does off her oxygen completely. They have also cut two medications to one time a day instead of 2 times a day so that is exciting! Also miss Madison is up to 8lbs 4ozs! I took some bath pictures a couple days ago. I still have to edited them and then I will share.
To all those who are just reading my story from the beginning and those still following thank you it is very sweet of you :)
A journey to pregnancy. My twin pregnancy, cerclage, the 23 week premature birth, death, my NICU baby Madison and everything in between.
Wednesday, January 25, 2012
Sunday, January 22, 2012
94.7 WMAS
The radio interview went awesome. The only thing we didn't talk about well not talk about but the only thing not recorded was about going through infertility treatments and the overall struggle with this pregnancy. Important points were made. Dexter was talked about often as well as Madison and it was known that they were both very premature and that Dexter did sacrifice himself for his sister. It was a very cool experience. I was never behind a Mic at a radiostation before. We took some pictures and I asked for a copy of the montage when it is all done and so I'm waiting for that email. The actual live radiothon is next month and coming up quick. I'm glad I had the chance to outwardly thank the nurses, doctors, and the NICU team overall.
Thursday, January 19, 2012
Odd
Our radiothon interview had to be resechuled for Saturday so Saturday it is. I had my ultrasound follow up and everything was "normal." Normal yet I never stopped bleeding after the births. Today was my last day of the bcps and I wont be taking anymore after this. I did ask to get a prescription to be back on Metformin again and I'm hoping it will help with everything this time. I hope I didn't mess up my hormones taking the pills but we will see what happens. While at the hospital my mother and I decided to stop my the NICU and make a date for Saturday to stop by with Madison...I'm wicked excited for that :)
Sunday, January 15, 2012
Radiothon
So we filled out the necessary paper work to share our story for the Radiothon next month and was told our info would be passed onto the radiostation to get in touch with me for an interview time so they could put my story to music. I'm pretty excited. We go in Tuesday. I think I'm going to ask about getting a copy of it when its all finished. It would be an awesome keepsake and it is something we could share with Madison when she is older. We will also be live at the Radiothon it should be an awesome experience. All donations go directly to the children's hospital so I'm all for it.
Wednesday, January 11, 2012
Fulltime
Let me start off by saying motherhood is a fulltime job in its own. How anyone goes to work and takes care of their child(ren) I don't know. However I am very thankful for the help I have. With her though I know she can't go to a daycare or really be around other kids especially right now so I'm glad I did decide to take the package and leave work because there would be no way I could keep passing her off to my parents. She is doing well, she's 7lbs 1oz and very close to to 19 1/2 inches long. She is sleeping better at night and is awake more during the day. She still has some constipation issues every couple days so we are seeing her pediatrician tomorrow and is having an eye appointment in the morning.
Sunday, January 8, 2012
Admitted
It happened. Madison was admitted to the hospital friday night. Her heart rate kept on droppng over and over and she just wasn't acting herself. Her heart rate went as low as 90 bpm and her monitor is set at 120 bpm and apparently her heart rate dip doesn't matter to the doctors but it isnt her norm. They drew blood, put in an IV, did chest x rays and a nasal swap to check for RSV. The answer I got from people were that "we found out she's hungry," and "her thyroid is a bit elevated so we may have to increase here medication." That was pretty much it. Oh and we are waiting a few days to hear back on her blood culture to see if she has an infection. So she was discharged Saturday late afternoon and thats all the info I got. So her doctor appointments are coming up and questions will be asked.
Thursday, January 5, 2012
The Ultrasound
Well the ultrasound was had yesterday...no babies : / he turned on the sound and one point and I was like huh!? I immediately knew it was too slow for a baby's heart rate and I guess he was checking the blood flow to my ovaries. I did see a few follicles...brings me back to my fertility treatment days. It was so weird seeing an empty uterus...even more so seeing my uterus with just Madison after Dexter was born. He said my lining was thick and he couldn't tell if my period was going to start or not...but I'm taking the bcps now so I wonder if I should stop them and see what happens on its own. I didn't want to take them in the first place because I wanted to see what my body would do I hope I'm not messing everything up. I won't know the official results until they get intouch with my doctor and I see her in a couple weeks. We will see.
Wednesday, January 4, 2012
We are sick.
Not in that way....as in a cold. Both of us. Sucks big time! But thankfully my parents take her from like 6PM on so we try to avoid infecting Madison because she really doesn't need a cold right now. And poor Madison is bound up...hasn't pooped for a couple days and she is extra fussy. The vising nurse came over and offered to get intouch with her pediatrician for me. So she did they call back and pretty much say oh bring her in at this time tomorrow my husband answered and of course agrees to it without thinking oh I have the car so how would you get there....men. and I tell him to ask what we can do now like a suppository or what. She said no suppositories and to do a rectal thermometer...well the nurse did it twice and Nadda....stupid fucking doctors. So I will have to reschedule that appointment and beg to give her a suppository.
Sunday, January 1, 2012
Happy New Year Everyone! I spent my night being a mommy. Hair pulled back, t shirt on and pj pants :) I rung in the New Year feeding that very special lady of mine. She had that "so sleepy gaze," as my husband calls it "milk drunk," Hehe. These holidays haven't been too festive...I haven't had the whole holiday spirit thing since I lost my baby but who would be right? I'm hoping this year will be a different story. Everything is more exciting through a child's eyes isn't it? I'm excited for her to actually be able to get excited for things. I'm waiting on that first laugh. So I ended up going to the doctors about my on going bleeding since the babies and well since I have pros they think it might be that. Some people have no bleeding at all (which it what i'vw had forever) and some have constant bleeding. So she percribed me bcps to try and stop the bleeding and ordered an ultrasound to make sure there isn't any tissue left over. I was hesitant to take the pills because we didn't check for pregnancy first...BUT I doubt that anyway. The ultrasound is Wednesday @ 5:30PM wish my luck.
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